Muscular dystrophy camp

[RAAZ]

Kathmandu, October 15:

The Muscular Dystrophy Foundation (MDF-Nepal), supported by the Lalitpur Sub-Metropolitan City, organised a day-long health camp yesterday at Jain Bhawan, Kamalpokhari.
Inaugurating the camp, Minister for Culture, Tourism and Civil Aviation, Pradeep Gwayali, highlighted the need of linking 3 million disabled people with socio-economic structures of development and taking them in consideration while formulating policies and programmes for their physical and mental capacity building. The aim of the camp is to provide knowledge and services on diagnosis, counselling and basic treatment to patients suffering from Muscular Dystrophies (MD).
“Our aim is also to enhance capacity building on basic physiotherapy as well as counseling skills of the parents of MD patients in Nepal whose service is vital for the betterment of their and other children living with the disease,” a press release stated. It said that over 60 patients benefitted from the camp.

THE HIMALAYAN TIMES

[Anup'da]

welll raaz i also had participated the camp, rather say i also volunteered there. u know what the childrens(especially male childrens) were there, and almost all of them were unable to stand properly.. the plight of the children was very grieve,. i had to weigh a ten year old child who weigh around 14kgs. i put the child over the weight machine, folded his arms and legs, to my astonishment i couldn't feel any tone or resistance of the muscle of the boy during the whole procedure..
i was so carried away thinking how could so helpless child going to live,,, he could barely move but got a conscious mind to think, may be he grow up knowing his lamency and eventual practicality that he could not carry any act, practically anything..
i think the muscular dystrophy foundation has done the tremendous job of helping out those childrens...

moreover children with duchenne muscular dystrophy will live around 20 yrs waiting for the ultimate respiratory failure(which can be postponed but can't be stopped).. now think of that!!!!

so i cordially thank mdf for such an inhumane effort..and hope some day cure for the disease will help to salvage such human suffering....